With the extensive list of physical damage done to my body, the movement disorders I endure everyday and the paralyzing, and my major illnesses even prior that made it difficult, cognitive, my ME/CFS and FM, as stated on site I also have hepc. The dystonia is spreading faster, the cramping parts of my body forcing them to stay in cramp positions as it spreads through my body, with the dystonia myocolonic convulsions on top I was left to wake up to every day, my ability when able to sit up, and to be able to type is beyond challenging, I often can't type, type the way my brain chops off words, often I can't speak at all. My muscles and ligaments have to be softened just enough to type, or it is barely legible.
I have also had computer problems and challenges extreme since January, some which still are not resolved
My cognitive abilities have always been severe since I got ME/CFS and FM, and worsened, especially after the psychiatric drugging and notable worsening after the first brain and body damage, that damaged every muscle and ligament in by body in January 2003, and more after, is noted on some documents.
So, I am trying to do the impossible, what I am trying to do, is reversed, I need the honest neurological medical care first as much as possible in order to do what I am trying to do which has proved impossible with 6 hospitals involved, and, given the complications and my history of adverse reactions to medication that was continually ignored alot of care must be taken which wasn't prior.
I am working on the summary for my website, so far I am unable to summarize 6 years, actually since 1991. The abuse and collusion was extensive.
I am also trying to redo a summary page for the blog which too has proven beyond my capabilities,just looking at blocks of type, as in paragraphs, my brain shuts off, if I can even do that. Often I can't even take a sentence in.
This blog which was in the beginning meant as a run off for my youtube channel of the same name with some added information was not meant to be the main site to get me help, the others have proved beyond my capabilities so far, although I haven;t given up.
However I am worsening and have been for several years and it is increasingly more rapid, even with all the naturals I have bought - they don't stop dystonia, cure ME/CFS or HepC although there are immune supports and medications, the last a scarey area for me as they have done so much damage, none the less I need some, the pain I endure is often extreme. Remember I have no doctor, left here, one neurlogist involved that has refused to stablized the dystonia, and only the other month dared to write it on a disability form after these years, the same one that my mother and I have begged for prescriptions, he aloted one which isn;t enough, and continued threats to cut me off, and also intimitation, in 2008 and 2009, unbelievable.
The summary, as sometimes other posts that are updated, get republished, and sent out although feedburner said prior it would usually catch these, this proved not so,
So please bear with me, while I try to get the summaries down, and I am also working on the timeline in more detail. I have no help for this, just sitting up is difficult and movement sets off the dystonia convulsions, and walking just a bit in my home does as well and also lands me in bed longer from continuously crashing from my ME/CFS also noted in some documetns'
I do have some temporary help to go through documents as I am unable on my own, I can uusally barely sit here and type, oftenI can only copy, paste and click with short spurts of typing, which people assume I am very active when I am able to do quite abit, and then in bed again. The help I have though is to bath me, change my clothes, get my groceries, prepare/chop food, and lift things, I can't lift much more than a lite book since January 2003 and it's not provided by the government as my access center was involved.
Also the videos I have up so far are done when all the above are stablized enough. I can't even write out a script,except 2 occasions. So people, as usual with ME/CFS dont know how severely ill you are, the neuroligal problems, the lead like fatigue and flu symptoms and you usually look well, you don't see the thousands of hours I have existed in my bed. And you can't see the muscle ligament damage except for the January 2003 #2 video, that wasn't the worst of it either, often ot doesn't show for various reasons.
Others I hope to get up are going to show me on medications that relaxed my muscles and ligaments and kept the movement disorders and sometimes the seizures under control. Getting this across to the public is a challenge I not up to, the medical profession has been hard enough, although most of their intent was on purpose, some from ignorance.
In order to blog and do videos, you need not to be mostly bed confined, be able to sit up, speak, type, focus,edit, move around, and not be in too much pain, not be paralyzed, and having myocolonic convulsions.
Please bear with me, that I am still alive and attempting yet again to get the honest neurological and medical treatment I am entitled to, without abuse, threats, intimation, torture, and that Canadian and Provincial government and the medical profession has denied me this even under the Universal Declaration of Human Rights, is, I don't have the word, none would be severe enough for what has been done.
That I am still alive through all this is a testament to my courage, determination, and my rights as a spirit soul and a human being, and to get the honest neurological medical treatment I am entitled to by Canadian law, and live an autonomous life as possible,
Namaste
Cheryl
0 comments:
Post a Comment