Cheryl Speaks Out

Sunday, September 20, 2009

neck giving out can't hold up landed on mac w/face 2x,today broke led display apple care not cover #dystonia #ABI #MECFS pc going too next!

2 comments:

Joanne said...: Have you considered the posibility that you may have lyme Disease as so many of us with ME/CFS are being found to be sufferring from Lyme and with long term antibiotics are getting our health back. All your symptoms could be related. See
http://www.canlyme.com/; Monday, September 21, 2009 1:11:00 PM
Cheryl said...: lyme disease was ruleout to be diagnosised with ME in 1991 which a hord of other tests, my first post is being reworked. if u look at the title of blog, I have brain damage from prescribed meds and DYSTONIA, convulsions and spasmodic spreading through body and down spine started in march 2003 from pshcyatric drugs for neuro illness. every muscle ligament damage shoreted and stiff PIOR NTO ON records left here. i mostly bedconfined convusosing and paralizing all day, Ididn't think live though ME. i know some take small dose of antibiotice for other, not lyme, me/cfs related, i see on yahoo groups I subsrib. i took antiboitics and got worse.
thx 4 posting, so others know, lyme has to be ruled out to be diagnoise with ME/cfs AS did a long list of other illnesses prior to the extensive brain and body damage

namaste; Monday, September 21, 2009 2:26:00 PM

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HOW YOU CAN HELP CHERYL

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~ We are still hopeful a Sponsor comes forward for :

a hospital advanced expertise in M.E./CFS/FM/MCS, HepC and extensive neurological damage from prescribed medications, dystonia, seizures, movement disorders, and the extensive muscle ligament damage. Also need to be admitted for a period of time for extensive diagnostic testing, treatment, getting the dyskensia/dystonia's stabilized, movement disorders and damage mitigated, which is not being allowed and low functioning levels repeatedly not taken into consideration from discrimination regarding ME/CFS/FM, and since the brain damage, or done purposely knowing I am unable to setting up tests impossible for me to get to, wrong ones and others I need the most refused. I also have HepC which has worsened, however, I will not take interferon nor invasive procedures, there are other alternatives.

As well the extensive list of adverse drug reactions put on my medical files ASAP which should have been done years ago and repeatedly refused. I am bed/houseconfined , or was consistently with fluctuations in earlier years prior to 2003, and have been for years, which they know, the documentation goes back for near 2 decades.

The damage is extensive and very complicated. Anyone else with Acquired Brain Injuries (A.B.I.) gets top extensive neurological diagnosis, treatment facility, care and extensive recovery programs at paces they can handle as well as support for family members. I have received none.

The amount of tests that are needed, illnesses and complicated damage and with limited functioning level, as much as possible needs to be done while admitted in hospital that can accommodate most, if not all of the honest testing, diagnosis. Treatments, care and on my way to the best recovery possible and eventually the extensive physiotherapy, speech, cognitive, I have been denied for years when I have improved enough, my illnesses and damage and healing, setting the pace.

Transportation & care provider or nurse to accompany. I am unable to bath myself, change my clothes or prepare my own food. I can walk but not much. Myocolonic dystonia convulsions, movement disorders , have to be stabilized long enough for transportation (my power wheelchair comes with me), I have gotten the severity of them reduced from natural treatments and one prescription afforded me on/off over the past years that had to be begged for, to bring down the dystonia convulsions, it doesn't stop it - clonazapam, they are still on-going daily. I have been repeatedly cut off all medications, and the myocolonic convulsions, spamoidic generalized dystonia never stabilized 24/7 , my shoulder sockets/ligaments are badly damaged from convulsing every day, as well as the left side of my body s weak & drags around, my left jaw dislocates. Cognitive, speech, physio therapy is needed, and regular medications including for lungs, pain, and immune therapy I had for my ME/CFS as well as others are needed.

I need a in-house doctor immediately that is familiar with ME/CFS and my functioning levels so the cycle of discrimination stops.

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~ Petitions will be set up to try yet again to get the extensive neurological medical care I have been denied, although all politicians and others have been written to for years, as well as media,, advocates and activists. We have little faith in a Petition after everything that has already been done to no avail with government. When Petitions are posted please forward widely.

~ Human & Patient Rights Lawyers, Canadian, USA, Worldwide Advocate Groups, Individuals please take a stand and show or add your name/support and those that can please help

please contact : publicappealforcheryl@gmail.com

Any Topics not related to my Personal Sitation I blog on MBN

If you came here looking for any videos on topics not related to my personal situation, I post, blog those on http://www.mobilebroadcastnews.com/ , as well as many from here.

My focus is getting me the honest neurological medical care I have been denied and also what happened and what is allowed to go on here, of course, the care I need desparately is priority. When I started again and did my first videos , I was doing abit better and got sidelined to some world issues I am passionate about and hope to continue later. However, I have worsened severely, with a few flucations and am mostly bedconfined, also my speech is often worse, or can't speak at all, or sit up at computer.

I can't stay alive without help, literally, and I have to put myself first.
It's a slow go, people don;t understand how ill or badly damaged I am pyschically, you can't see in the videos.

Please keep checking back for updates and hopefully my website for me.

Cheryl Speaks Out

Sunday, September 20, 2009

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