Secondary Dystonia Causes, What Choices Am I to make when caused by Drugs in the first place

Dystonia, as is ME/CFS is little known neurological illness or damage, and there are many forms of dystonia, usually involving parts of your body or groups, cramping muscles and ligaments together, sometimes on and off, sometimes they stay permaent, others are movement disorders, some very severe in nature like mine that involveds all the muscles and ligaments spamsing in your body at the same time, or rapid jerks that look then often look like seizures, notably you can talk though most of these, sometimes, for me they are mixed with seizures, i was left to endure for years with no medication to stop them, the seizuure medication used for misdiagnosis for bipolar and on them for only 3 months not only damaged every muscle and liagemtn in my body, but the Tegretol started the Acute Dystonia as well and seizures.

Dysknisa (TD) if often caused by neurolpetic's but many other drugs do, as they also do with Dystonia.

What I find frustrating, and maddening, is that most of the Dystonia/Dyskenisa sites, only list neuroleptics as the cause still in 2008 and 2009, which is anything but the case. And that many of the drugs prescribed to treat them are cause of dystonia and dysensia's.

Some of the drugs that can cause dystonia and dyskenisa's most notably dystonia are:

- neuroleptic's, lithium, antidepressans (SRRI's and SRNI'S are notorious for causing and worsening dystonias's), tegretol, buspar, xanax, dopamine antagonists, dopamine depeleting drugs, here is a short list:

The list of drugs causing drug induced dystonic reactions is long but includes:

* antidepressants (amitriptyline, Amoxapine (Asendis), bupropion, clomipramine (eg Anafranil), doxepin (eg Sinequan), fluoxetine (eg Prozac), imipramine, nortriptyline (Allegron), trimipramine (Surmontil) and trazodone (eg Molipaxin)).

* anti-anxiety agents (alprazolam (Xanax), buspirone (eg Buspar))

* anti-nausea/vomiting agents (metoclopramide (eg Maxolon), prochlorperazine (eg Stemetil)).

* neuroleptics (chlorpromazine (eg Largactil), clozapine (eg Clozaril), fluphenazine (eg Moditen), haloperidol (eg Haldol), perphenazine (Fentazin), promazine, trifluoperazine (eg Stelazine)). The dystonia associated with neuroleptics is often called tardive dystonia.

* other drugs include the psychiatric drug lithium (eg Priadel), midazolam used in anaesthetics, phenytoin (eg Epanutin) an anticonvulsant, promethazine (eg Phenergan) an anti-allergy drug

There are many types of dystonia, some are herditary, many are Secondary, meaning they are caused by other factors. Some involve movement disorders while others cause cramping of muscles and ligmanets of parts of your body, and in many cases, causes the spasmodic dystonia to spread through your body.

Causes, included but not limited to:

- there is a heritatory Dystonia, which can be checked for through gene study and rules in/out
- neurological illnesses can cause or contribute
- damage from drugs or perscribed medication that damage the basil gaglia of the brain. Note the studies have shown this had already may have occured in many with ME/CFS.
- any tramua's to the brain, tramatic and aquired
- lack of oxygen to the brain
- others

(see links at end)

There is no cure for dystonia's, there is no cure for dyskenisa's. These, with the exception of hereditary, are often human made, as in prescribed medications, or human error.

Not so oddly enough, many of the drugs prescribed for dystonia, dyksenisa, parkisons, parkinsomium, cause dystonia and dyskensia and parkinsonium,

So what do you do when yours is caused from medications and neurological illeness that has been mostly ignored by the world although worse than HIV/AIDS and MS, unless the last few weeks of living?

Do you take those drugs, do you let them experiment with drugs again to find out the right ones or groups that may help control the dystonia's? There is brain surgery and TMS stimulatatin as well. While many of these help, many have caused more damage, including stroke, and no help or improvment whatsoever.

Some of the treatments for Dystonia's:

- if you can get out, psychical therapy, meditation, muscle realaxtion
- oral medications, some which cause dystonia' themselves (see end links)
- Brain surgery or TMS ie, brain stimulation, they also use this for medication intolerance depressants, often used in Parkinsom's notably with more success and also epileptics, although few use the procedure, and keep prescripting drugs.

http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20090515/wfive_epilepsy_090516/20090516/

Notably, the 2nd part of that video shows the 48 hour EEG with video I was denied at the Western, I needed for seizures and also to determine how much was seizures and dystonia, as I was having both, which I was denied, while others were not.

I have so far, been left to endure dystonia, 2 types, the myoclonic - and and the spasmodic since March 2003 when I had acute dystonia and seizures, and non-stop since about Febuary/March 2004. my arms sockets are giving out.

With psychatry in the picture where it does not belong, as these are neurological, many people get pshychatrized saying the dystonia's are psychatric, even ICU nurses. Where have I heard that before, oh yes my ME/CFS. For many it takes years of getting proper diagnosis, especially myoclonic dystonia (looks like seizures to you but you can talk through them), as well as the spasmodic. Why because they don't know the answer and are arrogant, do not listen, and many don;t want to be disproved by sending you to a neurolgoist that only deals with dystonia's. And then there is psychatry that wants behavorial control, and wants to psychatrize everything. Even your morning cup of coffee.

Also to be noted that many people with dystonia;s, their dystonia's are alcohol responsive. Meaning they stop or reduce the dystonia's. However, in the long run, they can worsen them. Many people left untreated, even those getting treatment from neurolgists use some form of alchohol.

My ME/CFS often are alcohol intolerant, it has varied over the years. My Hep C is intolerant and only does more damage. My dystonia's are alcohol responsive and I have had to rely on some form of alchol of and on to try to control them, when cut off medications to do so, or even on 1 I was prescrbied. Oddly enough the Amantadine, a dopamine antagnoist, stopped the dystonia, but make by POTS worse which then worsened the dystonia. Such is the life of many drugs from Big Pharma.

here are some links to some organiztins, unfortunately as mentioned many who say there are leading in the field of advacacy only have neuroleptics mentioned as cause of medications. Not only poor information but what kind of Advacocy is that?


http://www.lhsc.on.ca/Health_Professionals/CCTC/edubriefs/motorfnc.htm

http://www.dystonia-foundation.org/

http://www.wegohealth.com//

http://www.dystoniacanada.org/

http://www.cmdg.org/