There is a big buzz about the XMRV retrovirus , although many viruses have been found and related to ME/CFS, several I have tested positive for. there is quite the list now most of the testing is in the USA so of course is the latest one. This latest retro-virus the ME/CFS community is excited for several reasons.
Firstly, that it proves without a doubt that it is a disease, and pushes psychiatry and non-believers out the door and also a lot of the criteria set by the CDC, which psychiatrizes ME/CFS quite a bit as well as some of their other criteria. Although not everyone will test positive, and as mentioned there are other virus related, HH6-A and; B, HH7, RNase L, Coxscackle, EBV, Herpes zoster (Varicella Zoster is also now suspect which I have tested positive for as well as HHV-6 and EBV Canada doesn't have the other tests), and another virus was discovered several years back, I can't remember the name and will update when I find it. There is a more comprehensive list at the end of this posting.
As this may be treatable with HIV and antiviral drugs, and is a subset from prostrate cancer, the community is very excited. I was on antivirals or immune modulators Immuvoir,I was cut off from I did have improvement, and I have Herpes zoster as well. I still have some old medication left for that, however my body doesn't like it very much. I wonder if Ampligen will have any effect on this and the antivirals, they telling people to wait until more research is done. And drugs that actually kill it, not just control or subdue them is another factor.
THE TESTING: There is a test out or will be soon in the USA, you have to have doctor sign for it, which I don't have still. And I haven't called to see if they will shipped to the Canada, I will when I get a doctor.
VIP lab in Reno, NV has test kits for PCR test for the XMRV virus itself. Another test kit recommend by Dr. Paul Cheney is the NKCP & LYEA test. Your doctor
can call the lab for information and can order the test kit(s) sent to
directly to you. You can also call for pricing, which has been postponed
until the release of the paper. VIP Lab: 775-351-1890, call from 11am-7pm
(CST) M-F.
If you want to be tested call the lab at the above number and they will ship out a kit to you. Your doctor has to sign , then take it to a local lab to get the test done and then it gets shipped overnight back to VIP Labs. It takes about two weeks to get the results.
FROM WHITTEMORE
http://www.wpinstitute.org/news/news_current.html
FROM WHITTEMORE
http://www.wpinstitute.org/news/news_current.html
Other labs and viral and other tests for ME/CFS are located at:
Specialty Laboratories, REDLABS USA, currently are your best choice for the other viruses and tests need if you are Canadian or in the USA. Not covered by Canada and not available here, and is expensive. Health Canada really needs to get up to date.
* Health Genetic Center [Canada] http://www.dna-human.com/
* REDLABS [USA] http://www.redlabsusa.com/
* RED Laboratories [Belgium] http://www.redlabs.com/
* Immunosciences Lab [USA] http://www.immuno-sci-lab.com/
Here is one of the articles, there is a PDF as well from Whittemore.
In today's issue of Science Express, researchers at the
Whittemore-Peterson Institute (WPI), the Cleveland Clinic and the
National Cancer Institute report that 67% of 101 chronic fatigue
syndrome (CFS) patients tested positive for infection with xenobiotic
murine retrovirus (XMRV), a gammaretrovirus associated with a subset of
prostate cancer. Only 3.7% of 218 healthy subjects tested were positive
for the virus.
Read the joint press release issued today at
An abstract of the article will be available later
today at
The full article text is available to Science
subscribers, American Association for the Advancement of Science
members; one-day access to the AAAS site can be purchased for $15.00.
These important results provide evidence of the association of at least
a subset of CFS cases with retroviruses, a hypothesis formed in the
mid-1980s and pursued by several independent research groups. XMRV was
recently discovered in a subset of prostate cancer patients' tumor
cells and the finding by Lombardi et al may be the first documentation
of XMRV infection in women.
The authors raise questions about this discovery at the end of the
article, including "Is XMRV infection a causal factor in the
pathogenesis of CFS or a passenger virus in the immunosuppressed CFS
patient population?" This question and others warrant additional
investigation and the replication of this study's findings in other
patient cohorts should be a priority for the field. There is currently
no commercial test available for XMRV and studies of antiviral and
antiretroviral treatments must be conducted to test their efficacy
against XMRV infection.
The CFIDS Association of America congratulates Dr. Mikovits and her
team at the Whittemore-Peterson Institute and their collaborators at
the Cleveland Clinic and National Cancer Institute for this landmark
discovery. The findings themselves and publication of them in a journal
of the stature and circulation of Science is a highly significant
contribution to the field. This study and the high-profile publication
are important validation of the reality and seriousness of CFS and
those who suffer and have been stigmatized too long.
Citation:
Detection of an infectious retrovirus, XMRV, in blood cells of patients
with chronic fatigue syndrome. Lombardi VC, Ruscetti FW, Gupta JD,
Pfost MA, Hagen KS, Peterson DL, Ruscetti SK, Bagni RK, Petrow-Sadowski
C, Gold B, Dean M, Silverman RH, Mikovits JA. Science 8 October 2009.
1179052.
OTHER TESTS FROM REDLABS FOR ME/CFS:
Here is a list of other tests from Redlabs, I don't agree with the CDC definitions of whether you have ME/CFS or not, many have already been proven wrong and are still listed on Redlabs sites. Many people get depressed having ME/CFS/FM, some can drink, some can't. I have been alcohol intolerant on and off since I got ME/CFS, especially the first few years.
CHLP Chlamydia Pneumoniae - Qualitative: 87486
CISP Panel Chronic Infection Screen
CHLP Chlamydia Pneumoniae - Qualitative: 87486
CMVD Cytomegalovirus -Qualitative: 87496
EBVD Epstein Barr Virus - Qualitative: 87798
HHV6 Human Herpes Virus 6 - Qualitative includes A & B determination: 87532 x2
HHV7 Human Herpes Virus 7 - Qualitative: 87798
MYFM Mycoplasma Fermentans: 87798
MYPN Mycoplasma Pneumoniae: 87581
VZV Varicella Zoster- Qualitative: 87798
CMCP Panel Complete Chronic Fatigue Panel
ELAS Elastase: 82657
NKCP Natural Killer Cell Enumeration & Functional Assay (LU30) Panel: 88230 x2; 85032; 82397; 86357)
NOAS Nitric Oxide Synthase: 88184
RNAA RNase Activity Assay: 82657; 82664; 83912
RNAP RNase L Protein Quantitation: 84238; 84166; 83912
CMVD Cytomegalovirus -Qualitative: 87496
CYT1 Panel Cytokine Profile
GM-CSF GM-CSF, circulating levels: 88185
IFN gamma - Serum Interferon Gamma, circ levels: 88185 - Serum
IL1 beta - Serum Interleukin 1 Beta: 88185 - Serum
IL10 - Serum Interleukin 10, circulating levels: 88185 - Serum
IL12p70 - Serum Interleukin 12, circulating levels: 88185 - Serum
IL2 - Serum Interleukin 2, circulating levels: 88185 - Serum
IL4 - Serum Interleukin 4, circulating levels: 88185 - Serum
IL6 - Serum Interleukin 6, circulating levels: 88185 - Serum
IL8 - Serum Interleukin 8, circulating levels: 88185 - Serum
TNF alpha - Serum TNF alpha, circulating levels: 88184 - Serum
TNF beta TNF Beta, circulating levels: 88185
EBVD Epstein Barr Virus - Qualitative: 87798
ELAS Elastase: 82657
HHV6 Human Herpes Virus 6 - qualitative with A & B determination: 87532 x2
HHV7 Human Herpes Virus 7 - Qualitative: 87798
HHV8 Human Herpes Virus 8 - Qualitative: 87798
HHVP Panel Herpes Infection Panel
CMV Cytomegalovirus - Qualitative: 87496
EBV Epstein Barr Virus - Qualitative: 87798
CMV Cytomegalovirus - Qualitative: 87496
HHV6 Human Herpes Virus 6 with A & B determination - Qualitative: 87532 x 2
HHV7 Human Herpes Virus 7 -Qualitative: 87798
HHV8 Human Herpes Virus 8 - Qualitative: 87798
HLP1 Heavy Metals Lymphocyte Proliferation Assay: 86353 x10
HLP2 Heavy Metals Lymphocyte Proliferation Assay: 86353 x10
HTLV Panel T-cell Lymphotrophic Virus Profile
HTLV 1 T-cell Lymphotrophic Virus 1: 86687
HTLV II T-cell Lymphotrophic Virus II: 86688
IMO1 Immunobilan: IgA & IgM intestinal pathogen assay: 86317
INFP Panel Inflammation Panel
CRP1 C-Reactive Protein, High Sensitivity: 86141
ELAS Elastase: 82657
NOAS Nitric Oxide Synthase: 88184
RAF1 Rheumatoid Factor (Rheumatoid Arthritis): 86430
INSP Panel Infection Screen Panel
CHLP Chlamydia Pneumoniae: 87486
MAPD Mycoplasma Avium Paratuberculosis: 87561
MYFM Mycoplasma Fermentans: 87551
MYHM Mycoplasma Hominis: 87551
MYPN Mycoplasma Pneumoniae: 87581
TPGD Toxoplasma gondii: 87798
LYEA CD4/CD8 Lymphocyte Enumeration Assay: CD3, CD4, CD8, CD19, CD45: 86359 x2; 86360 x2
MCP1 Panel Mini Chronic Fatigue Panel
ELAS Elastase: 82657
NOAS Nitric Oxide Synthase: 88184
RNAA RNase Activity Assay: 82657; 82664; 83912
RNAP RNase L Protein Quantitation: 84238; 84166; 83912
MYCP Panel Mycoplasma+ Panel - Qualitative
MAPD Mycoplasma Avium Paratuberculosis: 87561
MYFM Mycoplasma Fermentans: 87551
MYHM Mycoplasma Hominis: 87551
MYPN Mycoplasma Pneumoniae: 87581
MYFM Mycoplasma Fermentans: 87551
MYPN Mycoplasma Pneumoniae: 87581
NKCP Natural Killer Cell Enumeration & Functional Assay (LU30) Panel: 88230 x2; 85032; 82397; 86357
NKEA Natural Killer Cell Enumeration Assay: 86357; 85032; 82397; 88230
NKFA Natural Killer Cell Functional Assay - Lytic Unit 30% (LU30): 85032; 82397; 88230
NOAS Nitric Oxide Synthase Assay: 88184
Cytokine - Spinal Fluid Cytokine Profile - Spinal Fluid
IFN gamma Spinal Fluid Interferon Gamma, circ levels: 88185 - Spinal Fluid
IL1 beta - Spinal Fluid Interleukin 1 beta: 88185 - Spinal Fluid
IFN gamma Spinal Fluid Interferon Gamma, circ levels: 88185 - Spinal Fluid
IL10 - Spinal Fluid Interleukin 10, circulating levels: 88185 - Spinal Fluid
IL12p70 - Spinal Fluid Interleukin 12, circulating levels: 88185 - Spinal Fluid
IL2 - Spinal Fluid Interleukin 2, circulating levels: 88185 - Spinal Fluid
IL4 - Spinal Fluid Interleukin 4, circulating levels: 88185 - Spinal Fluid
IL6 - Spinal Fluid Interleukin 6, circulating levels: 88185 - Spinal Fluid
IL8 - Spinal Fluid Interleukin 8, circulating levels: 88185 - Spinal Fluid
TNF alpha - Spinal Fluid TNF alpha, circulating levels: 88184 - Spinal Fluid
RNAL Panel RNase L Panel
RNAA RNase Activity Assay: 82657; 82664; 83912
RNAP RNase L Protein Quantitation: 84238; 84166; 83912
VZVD Varicella Zoster- Qualitative: 87798
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